Gaucher Registry, The
Longitudinal, observational program that tracks the health outcomes of routine clinical practice for patients with the disease.
Lupus Multiplex Registry and Repository
Long-term research project examining the different ways Systemic Lupus Erythematosus (SLE) affects various ethnic groups. Sponsored by the National Institute of Arthritis and Musculoskeletal and Skin Diseases.
Perioperative Cardiac Arrest Registry
POCA Registry investigates cardiac arrests and deaths of pediatric patients during the administration of or recovery from anesthesia to identify possible relationship of anasthesia to those incidents.