- National Reye's Syndrome Foundation, Inc.
Organization aims to educate and create awareness about Reye's syndrome and the risks involved using aspirin and salicylate among children. Also supports research for this brain and liver disease.
www.reyessyndrome.org
- Cleft Lip and Palate Association (CLAPA)
Provides information and support to new parents and people with the condition and their families.
www.clapa.com
- International Pelvic Pain Society
www.pelvicpain.org
- National Gaucher Foundation
www.gaucherdisease.org
- Anaphylaxis Foundation and Anaphylaxis Network of Canada
Offers product alerts and registry for product recalls and research and advocacy data.
www.anaphylaxis.org
- National Tay-Sachs & Allied Diseases Association@
Learn about National-Tay Sachs & Allied Diseases Association, which aims to fight and cure Tay-Sachs, Canavan, and related genetic diseases and support affected families. Sites offer organization information, research initiative, clinical trials, message board, and various chapters.
dir.yahoo.com/.../Tay_Sachs/National_Tay_Sachs___Allied_Diseases_Association
- Transverse Myelitis Association
Not-for-profit organization providing support to families affected by TM.
www.myelitis.org
- National Pancreas Foundation, The
Committed to advancing education and research related to diseases of the pancreas, including pancreatitis and pancreatic cancer.
www.pancreasfoundation.org
- Histiocytosis Association of America Virtual Offices
Online support for patients with histiocytosis their family and friends.
www.histio.org
- Patient Organization for Primary Immune Deficiencies (IPOPI)
Chat, conferencing, member organizations around the world, great resources on the various immune deficiency diseases.
www.ipopi.org
- Society for Light Treatment and Biological Rhytms - SLTBR
Dedicated to fostering research, professional development, and clinical applications in the fields of light therapy and biological rhythms.
www.sltbr.org
- Parent to Parent of Georgia, Inc.
Provides support and information to parents who have a child with a disability or special health care need.
www.parenttoparentofga.org
- Mia Hamm Foundation
Raises funds and awareness for bone marrow transplant patients and continues the growth in opportunities for young women in sports.
www.miafoundation.org
- Hughes Syndrome Foundation
Offers details of antiphospholipid syndrome and its treatment, research, and the foundation.
www.hughes-syndrome.org
- Canadian Organization for Rare Disorders
Committed to the enhancement of the lives of all persons affected by rare disorders.
www.cord.ca
- Klippel-Trenaunay Support Group
Provides information about the group and about syndrome, and to provide families, adults with K-T, and professionals with links.
www.k-t.org
- Foundation for Sarcoidosis Research
Nonprofit organization which supports scientific research on sarcoidosis and its cure, and strives to provide improved understanding of the disease and its causes. Based in Chicago, Illinois.
www.stopsarcoidosis.org
- Medsupport: Friends Supporting Friends
Provides 24 hr. support on the net via forums, chats, information, newsletters and articles in text and real audio, pen pals, members stories, and our own television show.
www.medsupport.org
- Take the Lead
Take the Lead is a nonprofit organization "dedicated to provide direct services, support and care for all qualified participants in the sport of dogs who suffer from the devastating realities of life-threatening or terminal illnesses."
www.takethelead.org
- National Sarcoidosis Resource Center
Provides information about sarcoidosis, including physicians and health providers in your area. Also assists with locating support groups and fellow sufferers.
www.nsrc-global.net
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