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Cystic Fibrosis

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  • Breathing Room, The
    Offers photographs, poetry, and links as a means to help cope with the condition.
    www.thebreathingroom.org
  • Chicago Cystic Fibrosis Awareness Day
    Annual conference aiming to help individuals and families become more aware of CF, more aware of each other as a community, and more aware of living life in the midst of disease.
    www.chicagocfawareness.org
  • Cystic Fibrosis Medicine
    Aims to provide information to professionals working with cystic fibrosis as well as patients and families.
    www.cysticfibrosismedicine.com
  • Cystic Fibrosis: What Is It?
    Multimedia guide where you can learn what it is, what causes it, what it is like to have it, and how it is inherited, diagnosed, and treated.
    www.ygyh.org/cf/whatisit.htm
  • Cystic-L
    Free email service for the exchange of information and support specific to cystic fibrosis.
    Cystic-L.org
  • CysticFibrosis.com [*]
    Information for cystic fibrosis families and patients including forums, online newsletter, articles, therapies, and other resources.
    www.CysticFibrosis.com
  • Jake's Cystic Fibrosis Page
    Information, newsletters, links, personal experience.
    www.angelfire.com/mo2/cf
  • Living With Cystic Fibrosis
    Contains info on how to deal with hospitalization, medication, school and social life and more.
    frontpage.velocity.net/yanc
  • MayoClinic: Cystic Fibrosis
    Includes symptoms, causes, risk factors, diagnosis, prevention, and treatment of cystic fibrosis.
    www.mayoclinic.com/health/cystic-fibrosis/DS00287
  • MedlinePlus: Cystic Fibrosis
    Collection of links to overviews of cystic fibrosis, description of its common characteristics, treatment issues, current organizations, research and support organizations, statistics, and more.
    www.nlm.nih.gov/medlineplus/cysticfibrosis.html
  • Merck Manual: Cystic Fibrosis
    Provides information about cystic fibrosis, the disease that affects the mucus glands of the lungs, liver, pancreas, and intestines.
    www.merck.com/mmpe/sec19/ch278/ch278a.html
  • NOAH: Cystic Fibrosis
    Features links to sites about the illness, care basics, and living with it.
    www.noah-health.org/en/lung/conditions/cystic
  • Spirit of Lo, The
    By Terry and Don Dietrich. Memoir of one family's triumphs and struggles as they raise a a child with cystic fibrosis.
    www.spiritoflo.com
  • Wikipedia: Cystic Fibrosis
    Article on cystic fibrosis. Also discusses treatments and causes.
    en.wikipedia.org/wiki/Cystic_fibrosis
 



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