Information for cystic fibrosis families and patients including forums, online newsletter, articles, therapies, and other resources.
- Wikipedia: Cystic Fibrosis
Article on cystic fibrosis. Also discusses treatments and causes.
- MedlinePlus: Cystic Fibrosis
Collection of links to overviews of cystic fibrosis, description of its common characteristics, treatment issues, current organizations, research and support organizations, statistics, and more.
- Cystic Fibrosis Medicine
Aims to provide information to professionals working with cystic fibrosis as well as patients and families.
- Breathing Room, The
Offers photographs, poetry, and links as a means to help cope with the condition.
Free email service for the exchange of information and support specific to cystic fibrosis.
- Cystic Fibrosis: What Is It?
Multimedia guide where you can learn what it is, what causes it, what it is like to have it, and how it is inherited, diagnosed, and treated.
- MayoClinic: Cystic Fibrosis
Includes symptoms, causes, risk factors, diagnosis, prevention, and treatment of cystic fibrosis.
- Spirit of Lo, The
By Terry and Don Dietrich. Memoir of one family's triumphs and struggles as they raise a a child with cystic fibrosis.
- Living With Cystic Fibrosis
Contains info on how to deal with hospitalization, medication, school and social life and more.
- Merck Manual: Cystic Fibrosis
Provides information about cystic fibrosis, the disease that affects the mucus glands of the lungs, liver, pancreas, and intestines.
- Chicago Cystic Fibrosis Awareness Day
Annual conference aiming to help individuals and families become more aware of CF, more aware of each other as a community, and more aware of living life in the midst of disease.
- Jake's Cystic Fibrosis Page
Information, newsletters, links, personal experience.
- NOAH: Cystic Fibrosis
Features links to sites about the illness, care basics, and living with it.