- Barth Syndrome Foundation
Intending to guide the search for a cure, support and educate physicians, and to create a caring community for families affected by this genetic disorder that affects males. In multiple languages.
www.barthsyndrome.org
- NINDS Barth Syndrome Information Page
Description of the rare congenital metabolic and neuromuscular disorder that affects boys.
www.ninds.nih.gov/health_and_medical/disorders/barth.htm
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