- Batten Disease Family Association (BDFA)
Supportive, informative, networking organization for the families, carers, and professionals giving care to children and adults with Batten Disease.
www.bdfauk.freeserve.co.uk
- Batten Support and Research Trust (BSRT)
Building public awareness of the disease.
www.bsrt.org.uk
- seeAbility
Charity for visually impaired, blind or partially sighted people with disabilities including learning disabilities and juvenile Battens. Offers supported living, residential, rehabilitation, and day services.
www.seeability.org
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