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Treacher Collins Syndrome

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  • Reflections on Treacher Collins Syndrome
    Amie Osborn offers her perspective on living with Treacher Collins syndrome, a little-known genetic disorder.
    www.treachercollins.org
  • Treacher Collins Family Support Group
    Offers support and friendship to families and individuals affected by Treacher Collins syndrome.
    www.treachercollins.net
  • Treacher Collins Syndrome - A Personal View
    Victoria Oliver-Macklin covers the common characteristics and genetics of Treacher Collins syndome and describes her own experience of it.
    www.treachercollins.co.uk
  • Treacher Collins Connection
    Provides medical and networking resources to people with Treacher Collins Syndrome while imparting to our children the strength, courage, and importance of not allowing a facial difference to define who we are. Includes information on the annual TCS retreat.
    www.tcconnection.org
  • National Craniofacial Association: Treacher Collins Syndrome
    Fact sheet about Treacher Collins Syndrome, also called mandibulofacial dysostosis, plus information on related web sites, organizations, and books.
    www.faces-cranio.org/Disord/Treacher.htm
  • Genetics Home Reference: Treacher Collins Syndrome
    Briefly explains what Treacher Collins syndrome is and offers links to more information.
    ghr.nlm.nih.gov/condition=treachercollinssyndrome
  • MedlinePlus: Treacher-Collins Syndrome
    Overview of Treacher-Collins syndrome, an inherited genetic disorder which causes deformities in the face and skull.
    www.nlm.nih.gov/medlineplus/ency/article/001659.htm
  • Guide to Understanding Treacher Collins Syndrome (PDF)
    Brochure from the Children's Craniofacial Association that answers the questions that are frequently asked by parents of a child with Treacher Collins syndrome.
    www.ccakids.com/Syndrome/TreacherCollins.pdf
  • Cleft Palate Foundation: Treacher Collins Syndrome
    Detailed information about Treacher Collins syndrome, the birth defect that varyingly affects the size and shape of the ears, eyelids, cheek bones, and upper and lower jaws.
    www.cleftline.org/publications/treacherCollins.htm
  • Wikipedia: Treacher Collins Syndrome
    Article about Treacher Collins Syndrome, a rare genetic disorder characterized by craniofacial deformities. Includes causes, symptoms, and related links.
    en.wikipedia.org/wiki/Treacher_Collins_Syndrome
  • Treacher Collins Teens
    Offers a forum to chat with other people with TC plus information about Baha hearing aids and events.
    www.treachercollins.net/TCT/TCT.html
  • Yahoo! Health Groups: Treacher
    Discussion group to exchange feelings, concerns, issues, treatment options, and more with those who have Treacher Collins syndrome (TCS) and their families.
    health.groups.yahoo.com/group/treacher
 



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