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Treacher Collins Syndrome

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  • Treacher Collins Family Support Group
    Offers support and friendship to families and individuals affected by Treacher Collins syndrome.
    www.treachercollins.net
  • Reflections on Treacher Collins Syndrome
    Amie Osborn offers her perspective on living with Treacher Collins syndrome, a little-known genetic disorder.
    www.treachercollins.org
  • Treacher Collins Syndrome - A Personal View
    Victoria Oliver-Macklin covers the common characteristics and genetics of Treacher Collins syndome and describes her own experience of it.
    www.treachercollins.co.uk
  • Treacher Collins Connection
    Provides medical and networking resources to people with Treacher Collins Syndrome while imparting to our children the strength, courage, and importance of not allowing a facial difference to define who we are. Includes information on the annual TCS retreat.
    www.tcconnection.org
  • National Craniofacial Association: Treacher Collins Syndrome
    Fact sheet about Treacher Collins Syndrome, also called mandibulofacial dysostosis, plus information on related web sites, organizations, and books.
    www.faces-cranio.org/Disord/Treacher.htm
  • Genetics Home Reference: Treacher Collins Syndrome
    Briefly explains what Treacher Collins syndrome is and offers links to more information.
    ghr.nlm.nih.gov/condition=treachercollinssyndrome
  • Guide to Understanding Treacher Collins Syndrome (PDF)
    Brochure from the Children's Craniofacial Association that answers the questions that are frequently asked by parents of a child with Treacher Collins syndrome.
    www.ccakids.com/Syndrome/TreacherCollins.pdf
  • MedlinePlus: Treacher-Collins Syndrome
    Overview of Treacher-Collins syndrome, an inherited genetic disorder which causes deformities in the face and skull.
    www.nlm.nih.gov/medlineplus/ency/article/001659.htm
  • Wikipedia: Treacher Collins Syndrome
    Article about Treacher Collins Syndrome, a rare genetic disorder characterized by craniofacial deformities. Includes causes, symptoms, and related links.
    en.wikipedia.org/wiki/Treacher_Collins_Syndrome
  • Yahoo! Health Groups: Treacher
    Discussion group to exchange feelings, concerns, issues, treatment options, and more with those who have Treacher Collins syndrome (TCS) and their families.
    health.groups.yahoo.com/group/treacher
 



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