- Cleft Palate Foundation: Treacher Collins Syndrome
Detailed information about Treacher Collins syndrome, the birth defect that varyingly affects the size and shape of the ears, eyelids, cheek bones, and upper and lower jaws.
www.cleftline.org/publications/treacherCollins.htm
- Treacher Collins Syndrome - A Personal View
Victoria Oliver-Macklin covers the common characteristics and genetics of Treacher Collins syndome and describes her own experience of it.
www.treachercollins.co.uk
- Treacher Collins Connection
Provides medical and networking resources to people with Treacher Collins Syndrome while imparting to our children the strength, courage, and importance of not allowing a facial difference to define who we are. Includes information on the annual TCS retreat.
www.tcconnection.org
- Genetics Home Reference: Treacher Collins Syndrome
Briefly explains what Treacher Collins syndrome is and offers links to more information.
ghr.nlm.nih.gov/condition=treachercollinssyndrome
- Treacher Collins Family Support Group
Offers support and friendship to families and individuals affected by Treacher Collins syndrome.
www.treachercollins.net
- Guide to Understanding Treacher Collins Syndrome
(PDF)
Brochure from the Children's Craniofacial Association that answers the questions that are frequently asked by parents of a child with Treacher Collins syndrome.
www.ccakids.com/Syndrome/TreacherCollins.pdf
- Reflections on Treacher Collins Syndrome
Amie Osborn offers her perspective on living with Treacher Collins syndrome, a little-known genetic disorder.
www.treachercollins.org
- National Craniofacial Association: Treacher Collins Syndrome
Fact sheet about Treacher Collins Syndrome, also called mandibulofacial dysostosis, plus information on related web sites, organizations, and books.
www.faces-cranio.org/Disord/Treacher.htm
- Yahoo! Health Groups: Treacher
Discussion group to exchange feelings, concerns, issues, treatment options, and more with those who have Treacher Collins syndrome (TCS) and their families.
health.groups.yahoo.com/group/treacher
- Treacher Collins Teens
Offers a forum to chat with other people with TC plus information about Baha hearing aids and events.
www.treachercollins.net/TCT/TCT.html
- MedlinePlus: Treacher-Collins Syndrome
Overview of Treacher-Collins syndrome, an inherited genetic disorder which causes deformities in the face and skull.
www.nlm.nih.gov/medlineplus/ency/article/001659.htm
- Wikipedia: Treacher Collins Syndrome
Article about Treacher Collins Syndrome, a rare genetic disorder characterized by craniofacial deformities. Includes causes, symptoms, and related links.
en.wikipedia.org/wiki/Treacher_Collins_Syndrome
|