Gaucher Registry, The
Longitudinal, observational program that tracks the health outcomes of routine clinical practice for patients with the disease.
www.gaucherregistry.com
Lupus Multiplex Registry and Repository
Long-term research project examining the different ways Systemic Lupus Erythematosus (SLE) affects various ethnic groups. Sponsored by the National Institute of Arthritis and Musculoskeletal and Skin Diseases.
lupus.omrf.org
National Registry for Ichthyosis and Related Disorders
Established to promote research into diagnosis and treatment, and to enroll affected individuals in the registry.
depts.washington.edu/ichreg/ichthyosis.registry
Perioperative Cardiac Arrest Registry
POCA Registry investigates cardiac arrests and deaths of pediatric patients during the administration of or recovery from anesthesia to identify possible relationship of anasthesia to those incidents.
depts.washington.edu/asaccp/POCA
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