- National Eosinophilia-Myalgia Syndrome Network
Supporting EMS sufferers and their families and working to increase public awareness of the illness caused by consumption of contaminated L-tryptophan supplements.
www.nemsn.org
- Take the Lead
Take the Lead is a nonprofit organization "dedicated to provide direct services, support and care for all qualified participants in the sport of dogs who suffer from the devastating realities of life-threatening or terminal illnesses."
www.takethelead.org
- Friends' Health Connection
Connects people who are currently experiencing or who have overcome the same disease, illness, handicap or injury in order to communicate for mutual support.
www.48friend.org
- Nevus Network
Home of the Congenital Nevus Support Group. Offers educational material and emotional support for those with congenital nevi and/or neurocutaneous melanosis (NCM).
www.nevusnetwork.org
- Melungeon Health Education and Support Network, The
Dedicated to the health of Melungeon descendants who have one or more of the five major Mediterranean illnesses, including Behçet's Syndrome and Sarcoidosis.
www.melungeonhealth.org
- Australian Pituitary Foundation
Supports research and disseminates information for the medical community, the public, pituitary patients, and their families. Includes news and contacts.
www.pituitary.asn.au
- Wobblers Anonymouse
Support group for those damaged by gentamicin. Symptoms include oscillopsia and loss of balance.
www.wobblers.com
- Cody Unser First Step Foundation
Not-for-profit corporation aimed at raising research funds to fight paralysis and build awareness of Transverse Myelitis.
www.codysfirststep.org
- Canadian Bacterial Diseases Network
www.cbdn.ca
- Beryllium Support Group
Information about chronic beryllium disease (CBD).
www.beryllium.org
- Myoclonus Research Foundation
www.myoclonus.com
- Children Afflicted With Lymphatic Malformations - CALM
Organization of parents and children afflicted with lymphatic malformations. Offers information, support, medical references, and encourages research to improve treatment.
www.staycalm.org
- Stevens Johnson Syndrome Foundation
Provides information and support to the medical communities and the public.
www.stevensjohnsonsyndrome.net
- Pituitary Society, The
Seeks to further the understanding of diseases of the pituitary gland.
pituitarysociety.med.nyu.edu
- Lois Joy Galler Foundation
Acquires the funds needed to conduct research and develop methods of preventing or curing Hemolytic Uremic Syndrome (HUS).
www.loisjoygaller.org
- Disfigurement Guidance
Information on treatments, literature, compensation and other services and facilities concerning disfigurement guidance and skin camouflage.
www.timewarp.demon.co.uk
- Langer-Giedion Syndrome Association
International support organization for people and families living with Langer-Giedion Syndrome and related disorders.
lgsa.net
- Worldwide Society of Wolfram Syndrome Families
Support group for a rare disease.
www.wolframsyndrome.org
- Sotos Syndrome Support Association
Provide a social support environment for professionals and families of individuals affected by Sotos Syndrome so they can meet, exchange ideas and help one another cope with the condition
www.well.com/user/sssa
- International Society for the Study of Cough
Promotes research in cough and encourages the exchange of ideas and information.
www.issc.info
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