- National Organization for Rare Disorders (NORD)
Voluntary health organizations dedicated to providing information on the prevention, treatment, and cure of rare "orphan diseases."
www.rarediseases.org
- Family Caregiver Alliance
Info, education and services for families and professionals who care for adults with cognitive disorders, including Alzheimer's, stroke, Parkinson's, brain injury, brain tumors, Huntington's, and other brain impairments.
www.caregiver.org
- Med Help International
Providing medical information and advice via an online patient network and question and answer forums staffed by doctors.
www.medhelp.org
- Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
Interdisciplinary association for the advancement of rehabilitation and assistive technologies.
www.resna.org
- Lupus Foundation of America@
Working to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public, and find the causes and cure.
dir.yahoo.com/.../Organizations/Lupus_Foundation_of_America
- National Pediculosis Association
National clearing house on head lice and scabies issues.
www.headlice.org
- National Aphasia Association
Promotes education, research, and services for people with aphasia and their families. Includes facts about the condition, news, and links to support groups.
www.aphasia.org
- National Association for Incontinence
www.nafc.org
- Office of Rare Diseases (ORD) NIH
Offers information on over 6000 rare diseases including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
rarediseases.info.nih.gov
- Dystonia Medical Research Foundation
Works to increase an understanding of dystonia through research, awareness, and support.
www.dystonia-foundation.org
- Global Fund to Fight AIDS, Tuberculosis and Malaria, The
Works to mitigate the impact caused by HIV/AIDS, tuberculosis, and malaria in countries of need.
www.theglobalfund.org
- National Association for Down Syndrome (NADS)
News, resources, and scientific information related to down syndrome from NADS, a not-for-profit organization serving people in the Chicago metropolitan area.
www.nads.org
- Magic Foundation
Provides support services for the families of children afflicted with chronic and/or critical disorders, syndromes, and diseases that affect a child's growth.
www.magicfoundation.org
- International Foundation for Functional Gastrointestinal Disorders
Provides information on IBS, GERD, abdominal or pelvic pain, bowel incontinence, and other GI disorders.
www.iffgd.org
- Coeliac Society
U.K. society offers information and advice on coeliac disease.
www.coeliac.co.uk
- Irritable Bowel Syndrome (IBS) Self Help Group
Including a bulletin board, library, and web ring.
www.ibsgroup.org
- Hormone Foundation, The
Promotes the prevention, diagnosis, and treatment of hormone-related conditions and diseases.
www.hormone.org
- Anaphylaxis Foundation and Anaphylaxis Network of Canada
Offers product alerts and registry for product recalls and research and advocacy data.
www.anaphylaxis.org
- National Reye's Syndrome Foundation, Inc.
Provides research and awareness for this liver disease.
www.reyessyndrome.org
- National Keratoconus Foundation
General information keratoconus, an ailment of the eye.
www.nkcf.org
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