- National Organization for Rare Disorders (NORD)
Voluntary health organizations dedicated to providing information on the prevention, treatment, and cure of rare "orphan diseases."
www.rarediseases.org
- Family Caregiver Alliance
Info, education and services for families and professionals who care for adults with cognitive disorders, including Alzheimer's, stroke, Parkinson's, brain injury, brain tumors, Huntington's, and other brain impairments.
www.caregiver.org
- Med Help International
Providing medical information and advice via an online patient network and question and answer forums staffed by doctors.
www.medhelp.org
- Global Fund to Fight AIDS, Tuberculosis and Malaria, The
Works to mitigate the impact caused by HIV/AIDS, tuberculosis, and malaria in countries of need.
www.theglobalfund.org
- Nothing But Nets Campaign
Nothing But Nets is a grassroots campaign to prevent malaria by raising awareness and funds to purchase and distribute bed nets and save lives.
www.nothingbutnets.net
- Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
Interdisciplinary association for the advancement of rehabilitation and assistive technologies.
www.resna.org
- Lupus Foundation of America@
Working to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public, and find the causes and cure.
dir.yahoo.com/.../Organizations/Lupus_Foundation_of_America
- National Aphasia Association
Promotes education, research, and services for people with aphasia and their families. Includes facts about the condition, news, and links to support groups.
www.aphasia.org
- National Pediculosis Association
National clearing house on head lice and scabies issues.
www.headlice.org
- National Association for Incontinence
www.nafc.org
- National Association for Down Syndrome (NADS)
News, resources, and scientific information related to down syndrome from NADS, a not-for-profit organization serving people in the Chicago metropolitan area.
www.nads.org
- Dystonia Medical Research Foundation
Works to increase an understanding of dystonia through research, awareness, and support.
www.dystonia-foundation.org
- Coeliac Society
U.K. society offers information and advice on coeliac disease.
www.coeliac.co.uk
- International Foundation for Functional Gastrointestinal Disorders
Provides information on IBS, GERD, abdominal or pelvic pain, bowel incontinence, and other GI disorders.
www.iffgd.org
- Office of Rare Diseases (ORD) NIH
Offers information on over 6000 rare diseases including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
rarediseases.info.nih.gov
- Hormone Foundation, The
Promotes the prevention, diagnosis, and treatment of hormone-related conditions and diseases.
www.hormone.org
- Magic Foundation
Provides support services for the families of children afflicted with chronic and critical disorders, syndromes, and diseases that affect a child's growth.
www.magicfoundation.org
- Irritable Bowel Syndrome (IBS) Self Help Group
Including a bulletin board, library, and web ring.
www.ibsgroup.org
- National Keratoconus Foundation
General information keratoconus, an ailment of the eye.
www.nkcf.org
- National Reye's Syndrome Foundation, Inc.
Organization aims to educate and create awareness about Reye's syndrome and the risks involved using aspirin and salicylate among children. Also supports research for this brain and liver disease.
www.reyessyndrome.org
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