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Neurofibromatosis

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Directory > Health > Diseases and Conditions > Neurofibromatosis

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  • Neurofibromatosis (NF1, NF2) [*]
    Multimedia guide where you can learn what neurofibromatosis is, what causes it, what it is like to have it, and how it is inherited, diagnosed, and treated.
    www.ygyh.org/nf/whatisit.htm
  • What is Neurofibromatosis?
    About the Neurofibromatosis clinic and what is neurofibromatosis.
    neurosurgery.mgh.harvard.edu/NFclinic
  • Neurofibromatosis Association UK
    Organization dedicated to help, support, and advise those affected by either forms of neurofibromatosis, their families, as well as professionals working for them. Based in Kingston Surrey, U.K., the association also offers a national helpline manned for four days a week with regional NF specialist advisors.
    www.nfauk.org
  • NF Network
    Regroups European associations of neurofibromatosis. The main aim is to maintain solidarity among the groups.
    www.neurofibromatosis-network.org
  • Merck Manual: Neurofibromatosis
    Information about neurofibromatosis, the genetic disorder in which many soft, fleshy growths of nerve tissue (neurofibromas) develop under the skin and other parts of the body.
    www.merck.com/mmhe/sec06/ch088/ch088d.html
  • Neurofibromatosis Resources
    Directory of neurofibromatosis related links.
    neurosurgery.mgh.harvard.edu/NFR
  • Neurofibromatosis, Inc.
    Nonprofit providing information and assistance to individuals and families affected by this disease and related disorders.
    www.nfinc.org
  • Race for NF Research
    Individual training for the Disney Marathon to raise money for Neurofibromatosis research.
    www.racefornfresearch.com
  • NINDS: Neurofibromatosis Information Page
    Explains neurofibromatosis, the genetic disorder of the nervous system which primarily affects the development and growth of neural cell tissues.From the National Institute of Neurological Disorders and Stroke (NINDS).
    www.ninds.nih.gov/disorders/neurofibromatosis/neurofibromatosis.htm
  • MedlinePlus: Neurofibromatosis
    Patient information about neurofibromatosis, the genetic disorder of the nervous system which causes tumors on nerves and thus affects the formation and growth of nerve cells.
    www.nlm.nih.gov/medlineplus/neurofibromatosis.html
  • Children's Tumor Foundation (CTF)
    Nonprofit medical foundation dedicated to improving the health and well-being of individuals and families affected by neurofibromatoses (NF).
    www.ctf.org
  • MedlinePlus Medical Encyclopedia: Neurofibromatosis-1
    Information about one of the types of neurofibromatoses, an inherited disorder characterized by formation of neurofibromas in the skin, subcutaneous tissue, cranial nerves, and spinal root nerves.
    www.nlm.nih.gov/medlineplus/ency/article/000847.htm
  • eMedicine: Neurofibromatosis
    Monograph on neurofibromatosis, the autosomal dominant disorder which affects the bone, the nervous system, soft tissue, and the skin. Includes pathophysiology, clinical description, and treatment.
    www.emedicine.com/DERM/topic287.htm
  • National Neurofibromatosis Foundation
    Information for patients, families, and healthcare professionals.
    neurofibromatosis.org
  • neurologychannel: Neurofibromatosis
    Overview, types, incidence and prevalence, risk factors, and causes of the genetic neurological disorder which affects cell growth in nerve tissue.
    www.neurologychannel.com/neurofibromatosis/index.shtml
  • Wikipedia: Neurofibromatosis
    User-generated article about neurofibromatosis, an autosomal dominant genetic disorder in which tumors grow along the nerves hindering the development of non-nervous tissues such as bones and skin.
    en.wikipedia.org/wiki/Neurofibromatosis
  • AAOS Your Orthopaedic Connection: Neurofibromatosis
    Disease information about neurofibromatosis, causes, diagnosis, NF1 and NF2 types, and treatment of the disease which causes tumors, or neurofibromas, to grow on nerves that lie under the skin.
    orthoinfo.aaos.org/topic.cfm?topic=A00050
 


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