- International Myotonic Dystrophy Organization
Nonprofit organization dedicated to provide resources, information, and support for the patients and their families. Site includes medical information, assistance available, genetic info, disability benefits, and much more.
www.myotonicdystrophy.com
- Myotonic Dystrophy Foundation
Homepage of the patient advocacy group dedicated to leading and mobilizing resources toward effective management, treatment, and cure for myotonic dystrophy, a common form of muscular dystrophy.
www.myotonic.com/go/mdf
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