- National Foundation for Ectodermal Dysplasias (NFED)
Assists people with Ectodermal Dysplasia to live not only normal life spans, but nearly normal lifestyles.
www.nfed.org
- Ectodermal Dysplasia Society
Provides information on the disease, as well as research, symptoms, and diagnosis.
www.ectodermaldysplasia.org
- Ectodermal Dysplasia Mailing List
Includes FAQ, manifestations, and types of the inherited disorder.
hometown.aol.com/charliein/ed/home.html
- MedlinePlus: Ectodermal Dysplasia
Includes illustrations, causes, risk factors, symptoms, treatment, and more about the condition characterized by abnormal development of the skin and associated structures
www.nlm.nih.gov/medlineplus/ency/article/001469.htm#visualContent
- HED Foundation
Serves children with Hypohidrotic Ectodermal Dysplasia and related disorders that affect the body's ability to cool itself. Includes information about protective apparel.
www.hedfoundation.org
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