- CysticFibrosis.com
Information for cystic fibrosis families and patients including forums, online newsletter, articles, therapies, and other resources.
www.CysticFibrosis.com
- Cystic Fibrosis Resource Centre
Information about cystic fibrosis for patients, parents, doctors and other carers.
www.cysticfibrosis.co.uk
- Cystic Fibrosis Medicine
Aims to provide information to professionals working with cystic fibrosis as well as patients and families.
www.cysticfibrosismedicine.com
- My Cystic Fibrosis.com
Resource that helps people with CF monitor their health and improve their understanding of this chronic disease through support and education.
www.mycysticfibrosis.com
- Breathing Room, The
Offers photographs, poetry, and links as a means to help cope with the condition.
www.thebreathingroom.org
- Spirit of Lo, The
By Terry and Don Dietrich. Memoir of one family's triumphs and struggles as they raise a a child with cystic fibrosis.
www.spiritoflo.com
- Wikipedia: Cystic Fibrosis
Article on cystic fibrosis. Also discusses treatments and causes.
en.wikipedia.org/wiki/Cystic_fibrosis
- Cystic-L
Free email service for the exchange of information and support specific to cystic fibrosis.
Cystic-L.org
- CF-Web
Information for people with cystic fibrosis and their friends and family
cf-web.mit.edu
- Cystic Fibrosis: What Is It?
Multimedia guide where you can learn what it is, what causes it, what it is like to have it, and how it is inherited, diagnosed, and treated.
www.yourgenesyourhealth.org/ygyh/mason/ygyh.html?syndrome=cf
- Cystic Fibrosis
www2.dal.ca/distsite/frank/cf.html
- Living With Cystic Fibrosis
Contains info on how to deal with hospitalization, medication, school and social life and more.
frontpage.velocity.net/yanc
- Learn About Cystic Fibrosis
Provides information on the disease pathology, cell biology, treatments, and genetics.
learnaboutCF.tripod.com
- Chicago Cystic Fibrosis Awareness Day
Annual conference aiming to help individuals and families become more aware of CF, more aware of each other as a community, and more aware of living life in the midst of disease.
www.chicagocfawareness.org
- Cystic Fibrosis Australian Pen Pal Page
Made by teenagers with cystic fibrosis for others with CF, or any one interested in the disease; includes pen pals and profiles.
www.geocities.com/Heartland/Farm/7705/CFAPPHOME.html
- Jake's Cystic Fibrosis Page
Information, newsletters, links, personal experience.
www.angelfire.com/mo2/cf
- NOAH: Cystic Fibrosis
Features links to sites about the illness, care basics, and living with it.
www.noah-health.org/en/lung/conditions/cystic
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