- Pompe's Disease Page
Working to raise awareness among medics and patients. Offers online texts including a guide to caring for a child with Pompe's.
www.pompe.org.uk
- Acid Maltase Deficiency Association
Provides basic overview, current research, and clinical trials devoted to the condition also known as Pompe's Disease or Glycogen Storage Disease Type II.
www.amda-pompe.org
- International Pompe Association
Seeks to coordinate activities and share experience and knowledge between Pompe Disease patient's groups worldwide. Includes news and directory of affiliate groups.
www.worldpompe.org
- Pompe Center, The
Program of Erasmus Medical Center in Rotterdam that generates, collects, and forwards clinical and therapeutic information on Pompe's disease. Also in Dutch.
www.pompecenter.nl
- NINDS: Pompe Disease
Fact sheet including descriptions of the infantile, juvenile, and adult forms of the illness.
www.ninds.nih.gov/health_and_medical/disorders/pompe.htm
- Physician's Guide to Pompe Disease, The
Brochure on the hereditary metabolic disorder caused by a deficiency of the enzyme acid alpha glucosidase, also known as acid maltase. From the National Organization for Rare Disorders.
www.rarediseases.org/programs/pompe_brochure.html
- Wikipedia: Glycogen Storage Disease Type II
User-created article about Pompe disease also known Acid Maltase Deficiency. Includes treatment, prognosis, and related links.
en.wikipedia.org/wiki/Acid_maltase_deficiency
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